We have a had a fairly quiet week, thankfully, compared to last week. Our baby hasn't had the easiest of health weeks, but we are beginning to see better days I think.
He hadn't eaten anything really - a few grapes or banana pieces is the extent of it - for 9 days. And he had started to vomit any food he tried to eat. I called the doctor and we started him on Zantac to protect his stomach from the aspirin he has to be on for his Kawasaki. That seems to have helped. He has eaten normal meals for about a day now. I think his body is starving though because he is having a hard time sleeping because he is hungry. So we are just obliging his tummy and feeding him when he feels able to eat for now.
We did see our doctor on Thursday. She said he is sounding fine. She isn't sure how long he will be on the aspirin, that will be up to cardiology and the echocardiogram findings when we see them on Tuesday, although it will probably be at least 4 weeks total maybe more. She did say that because of the aspirin we have to try to keep him away from people as much as possible - i.e. no nursery, no parks, no walmart or grocery stores. Basically, we have to stay home. If he would get another virus, it could complicate the picture of what is going on with the Kawasaki. And if he would get the flu, he could get Reyes' syndrome from the aspirin which could cause brain and liver damage. So, we are staying home.
I admit to going a bit stir crazy. I am a get out of the house person. I like to take the kids to do fun things. And I am sad that we can't even really see our friends as much. However, I am happy to do anything that will keep our precious baby healthy.
Tuesday, we see Rheumatology and Cardiology at Nemours. It is funny to be going there since I worked there for so long. I have never been on the patient end of things. Interesting change of scenery I am sure.
The baby does have a cold right now, but it should be ok as long as he doesn't get a fever. Austin has the same cold. We asked the doctor how scary the cold was and she said it should be just like a normal cold - it's major viruses and the flu that we are concerned about.
Austin is doing fine except for his cold. He really was not wanting us to take the baby to the doctor because the last time that meant a hospital stay. This time we were able to assure him that it was just a check up and we could go home like normal. Austin has a very tender heart. He takes everything seriously and is really starting to apply some of the lessons we are trying to teach him.
This has been a scary road we have walked. But the Lord has brought us through and is really teaching us things during this time. We are thankful for the prayer support we are receiving through it all.
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