We went to Nemours today for our rheumatology and cardiology follow up for our baby. (So glad to be at Nemours among friends - 4 years of working there makes for solid connections when you are in need. I love them all!).
We did find out that the baby's arteries are dilated in his heart, which we knew could happen. I was praying that it wouldn't happen, but it has. He won't get to stop the aspirin for at least four more weeks when they will do another test on his heart to find out how his arteries look then. The goal is that his body will heal itself in that time with the help of the aspirin. If it doesn't, we may be looking at longer term heart issues for him.
We also got him more medicine for his poor tummy. The aspirin has done a number on it, and he still is vomiting. So we are going to try a stronger medicine to try to heal up his stomach lining.
They also checked his blood work again, although I haven't heard results on that yet.
I am sad that he has any heart involvement from this disease; however, I know my God is bigger than this and He can heal our baby is He chooses. And if not, He will give us grace to make it through this storm. It is scary to me for some reason to hear heart problem. A lot of other things aren't as scary to me, but the heart seems like a big deal for some reason. But I know that these doctors are the best and will do everything possible to make sure our baby is as healthy as he was prior to this Kawasaki diagnosis.
We are, thankfully, allowed to begin to take him places, we just can't have him in what they call a "daycare" environment which includes church nursery. We don't want him to contract another disease on top of this one. But we can take him to the store if we need to which frees me up a lot. I am missing going to church as a family, but it is a small sacrifice on the road to having a healthy baby once again.
I'm thankful that we have a God who can heal even the most horrible diseases!
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